Lupus Foundation of America Heartland Chapter
Address
8050 Watson Road
Suite 169
Saint Louis, MO 63119
(314) 644-2222
Description:
Through a comprehensive program of research, education, support and advocacy, leading the fight to improve the quality of life for all people affected by lupus. Services include Physician Referrals, Disease/Disability Information, Summer Camps, Health/Disability Related Support Groups, and Workshops/Symposiums.
Handicap Accessible?
Yes
Is Shelter?
No
Related Resource
Date of Official Change:
March 26, 2024
Employer ID:
510192362
Year Incorporated:
1977
Address Listings
Physical (Primary)
8050 Watson Road
Suite 169
Saint Louis, MO 63119
Contacts
Amy Ondr
Phone Numbers
Main
(314) 644-2222
Toll Free
(800) 958-7876
Legal Status:
Non-Profit
Services
Click here to show all service details. Or click on a service name to see its details specifically.
Description
Lupus Community Education: Provides information about Lupus such as educational conferences, workshops, printed materials, community outreach and more. SELF: Strategies to Embrace Living with Lupus Fearlessly - https://www.lupus.org/SELF SELF is a free online self-management program designed to help people with lupus live their best life. SELF is tailored to support people with lupus in managing symptoms, stress, medications and working with their health care team. Take Charge - https://www.lupus.org/resources/take-charge The weekly education email series is designed to give people with lupus, including those recently diagnosed, tips and resources that can help them better manage their lupus and its everyday challenges. National Resource Center on Lupus - https://www.lupus.org/resources A collection of up-to-date resources and information on lupus. The Resource Center educates, empowers and connects you to lupus resources, programs and support services. Health Education Specialists â https://www.lupus.org/care-support/ask-a-health-educator or 1-800-558-0121 ext. 136 Our health education specialists are available to answer questions and provide caring support to people with lupus. Health education specialists are specially trained to provide people affected by lupus with non-medical counseling, disease education, information, and helpful resources. Bilingual (Spanish) health educators are also available. The Expert Series - https://www.lupus.org/resources/lupus-the-expert-series The Expert Series is an educational podcast that features empowering conversations with leading lupus experts that focus on helping you live well with lupus LupusConnect - https://www.lupus.org/resources/lupusconnect LupusConnect⢠is an online community where people affected by lupus can engage with others to share experiences, find emotional support and discuss practical ways to live and cope with the disease.
Hours
Mon-Fri - 9:00am to 5:00pm
Required Documents
No Documentation Required
Eligibility
No Restrictions
Fees
No Fees
Intake Procedure
Visit website or Call For Service
Languages
English
Service Area
- Missouri State - Calhoun, Clinton, Greene, Jersey, Macoupin, Madison, Monroe, Randolph and St. Clair Counties in Illinois -Kansas state
Geography Served
- Illinois
- Calhoun County
- Clinton County
- Greene County
- Jersey County
- Macoupin County
- Madison County
- Monroe County
- Randolph County
- Saint Clair County
- Calhoun County
- Kansas
- Missouri
If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.
Description
Lupus Support Groups: Provides a support group for individuals with lupus along with caregivers, family members and friends of individuals with lupus. Available both online and in person.
Hours
Call For Hours
Required Documents
No Documentation Required
Eligibility
Individuals with lupus, caregivers, family members and friends
Fees
No Fees
Intake Procedure
Call for service
Languages
English
Service Area
- Missouri State - Calhoun, Clinton, Greene, Jersey, Macoupin, Madison, Monroe, Randolph and St. Clair Counties in Illinois - Kansas State
Geography Served
- Illinois
- Calhoun County
- Clinton County
- Greene County
- Jersey County
- Macoupin County
- Madison County
- Monroe County
- Randolph County
- Saint Clair County
- Calhoun County
- Kansas
- Missouri
If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.
Description
Provides a listing of physicians who treat lupus is available.
Hours
Mon-Fri - 9:00am to 5:00pm
Required Documents
No Documentation Required
Eligibility
No Restrictions
Fees
No Fees
Intake Procedure
Call for service
Languages
English
Service Area
- Missouri State - Calhoun, Clinton, Greene, Jersey, Macoupin, Madison, Monroe, Randolph and St. Clair Counties in Illinois -Kansas State
Geography Served
- Illinois
- Calhoun County
- Clinton County
- Greene County
- Jersey County
- Macoupin County
- Madison County
- Monroe County
- Randolph County
- Saint Clair County
- Calhoun County
- Kansas
- Missouri
If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.
Description
Annual Summer Jam Girls Retreat The Summer Jam Girls Retreat is a weekend camp for girls aged 12-19 who have lupus. Campers will be supervised by compassionate camp counselors who are also living with lupus. This is a great opportunity to meet others your age who understand your health struggles while also learning about your disease and having fun!
Hours
Friday, June 7, 2024 to Sunday, June 9, 2024
Required Documents
No Documentation Required
Eligibility
Girls ages 12-19 years with lupus
Fees
Call for information
Intake Procedure
Call or Visit Website https://www.lupus.org/heartland/heartland-chapter-homepage
Languages
English
Offered Outside of Physical Location
Yes
Service Area
- Missouri State - Illinois State - Kansas State
Geography Served
None
Description
Provides a variety of programs and webinars to educate people about lupus and how to best manage the disease. Lupus & You: Answers. Advocacy. Action. - https://www.lupus.org/resources/lupus-and-you A free educational series where people with lupus, their family and friends have the opportunity learn about the latest in lupus research and helpful resources for managing the disease. Youâll also hear about ways you can engage in advocacy and awareness efforts.
Hours
Call For Days/Hours
Required Documents
Call For Details
Eligibility
- Lupus diagnosis - Family and/or caregivers
Fees
No Fees
Intake Procedure
Call for service or visit website at at www.lupus.org/heartland
Languages
English
Service Area
- Missouri State - Calhoun, Clinton, Greene, Jersey, Macoupin, Madison, Monroe, Randolph and St. Clair Counties in Illinois - Kansas State
Geography Served
- Illinois
- Calhoun County
- Clinton County
- Greene County
- Jersey County
- Macoupin County
- Madison County
- Monroe County
- Randolph County
- Saint Clair County
- Calhoun County
- Kansas
- Missouri
If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.
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