Spina Bifida of Greater St. Louis Incorporated

Description

Zippered folders contain medical, educational, and inspirational information along with local, regional, state, and national resource contact information are stocked at all St. Louis area hospitals with Spina Bifida Clinics. Packets are provided free to all new parents of children born with Spina Bifida.

Hours

Information is available 24 hours at all area hospitals with Spina Bifida Clinics

Required Documents

No Documentation Required

Eligibility

Parent with a new child born with Spina Bifida

Fees

Free to parents

Intake Procedure

Spina Bifida Clinic Coordinators provide materials upon a child's birth

Languages

English

Service Area

Any patient sent to St. Louis Spina Bifida Clinic living in the following counties: - Franklin, Jefferson, Lincoln, St. Louis City/County, St. Charles and Warren counties in Missouri - Calhoun, Clinton, Greene, Jersey, Macoupin, Madison, Monroe, Randolph and St. Clair counties in Illinois

Geography Served

Description

Grant programs that are intended to help children with Spina Bifida enhance their quality of life and to help those individuals achieve their full potential. Grant Programs support activities and equipment that impacts the overall quality of life for the individual born with Spina Bifida, and for their family, that may otherwise be outside of financial reach.

Hours

Mon-Fri - 12:00pm (Noon) to 3:00pm

Required Documents

- Explanation of program benefit - Doctor's certification of disabililty - Letters of recommendation (depending on size of grant request) - Proof of acceptance at proposed school or program - Detailed construction plans and estimates (where appropriate) - Family financial needs - call for details

Eligibility

Individuals with the birth defect Spina Bifida living in the defined service area

Fees

Call for details

Intake Procedure

Application forms available on the SBSTL website or upon request via mail

Languages

English

Service Area

- Franklin, Jefferson, Lincoln, St. Louis City/County, St. Charles and Warren counties in Missouri - Calhoun, Clinton, Greene, Jersey, Macoupin, Madison, Monroe, Randolph and St. Clair counties in Illinois

Geography Served

Description

Parents Support Group for Newborn-to-pre-Kindergarten and K-to-grade-10, provides social and educational information and parent counseling support. YAA Support Group provides social and educational support for any individual age 17 or older, and provides opportunities for social, physical and developmental growth, including information regarding potential employment skills and opportunities.

Hours

Mon-Fri - 12:00pm (Noon) to 3:00pm

Required Documents

No Documentation Required

Eligibility

Any individual or family with Spina Bifida or other Neural Tube birth defect

Fees

No Fees

Intake Procedure

Contact Victoria Portell - New Parents Coordinator, Laura Baer- K-to-10 Parents Group Coordinator, Kelly Abbott- YAA Support Group Coordinator

Languages

English

Service Area

- Franklin, Jefferson, Lincoln, St. Louis City/County, St. Charles and Warren counties in Missouri - Calhoun, Clinton, Greene, Jersey, Macoupin, Madison, Monroe, Randolph and St. Clair counties in Illinois

Geography Served

Description

Three day family campout at the Missouri Edmund Babler State Park's Outdoor Education Center- an accessible camping facility. Individuals and families attend the SBSTL camp and participate in structured educational and social activities designed to promote personal development.

Hours

Call Mon-Fri - 12:00pm (Noon) to 3:00pm for specific camp hours

Required Documents

Call for details

Eligibility

Any individual or family with Spina Bifida or other Neural Tube birth defect

Fees

No Fees

Intake Procedure

RSVP invitation, or simply show up

Languages

English

Service Area

- Franklin, Jefferson, Lincoln, St. Louis City/County, St. Charles and Warren counties in Missouri - Calhoun, Clinton, Greene, Jersey, Macoupin, Madison, Monroe, Randolph and St. Clair counties in Illinois

Geography Served

Description

Post Secondary educational scholarships provided for individuals attending two-year to four-year colleges or universities, diploma oriented trade schools or other degree based educational training programs.

Hours

Mon-Fri - 12:00pm (Noon) to 3:00pm

Required Documents

- Doctor's certification of disability - Letters of recommendation - Proof of acceptance at proposed school - Current school grades and/or proof of graduation - Family financial needs - call for details

Eligibility

Individuals with the birth defect Spina Bifida living in the defined service area

Fees

No Fees

Intake Procedure

- Application forms available on the SBSTL website or upon request via mail - Service Contact Person: Mark Abbott - Scholarship Coordinator

Languages

English

Service Area

- Franklin, Jefferson, Lincoln, St. Louis City/County, St. Charles and Warren counties in Missouri - Calhoun, Clinton, Greene, Jersey, Macoupin, Madison, Monroe, Randolph and St. Clair counties in Illinois

Geography Served

Description

Three-Day family campout at the Missouri Edmund Babler State Park's Outdoor Education Center- an accessible camping facility. Individuals and families attend the SBSTL camp and participate in structured educational and social activities designed to promote personal development.

Hours

Call Mon-Fri - 12:00pm (Noon) to 3:00pm for specific camp hours

Required Documents

Call for details

Eligibility

Any individual or family with Spina Bifida or other Neural Tube birth defect

Fees

No Fees

Intake Procedure

RSVP invitation, or simply show up

Languages

English

Service Area

- Franklin, Jefferson, Lincoln, St. Louis City/County, St. Charles and Warren counties in Missouri - Calhoun, Clinton, Greene, Jersey, Macoupin, Madison, Monroe, Randolph and St. Clair counties in Illinois

Geography Served